Supplementary written evidence submitted by Jane Lyons, Cancer52 (CSV0060)


Dear Chair


Many thanks for inviting Cancer52 to give evidence at the Health and Social Care Select Committee on cancer services last week. I wanted to follow up on a few points.


As you heard from Katy last week, people with a rare and less common cancer often have a difficult and lengthy experience getting a diagnosis and then subsequently finding appropriate help and support as they undergo treatment and recovery. We also know that many initiatives are begun in the more common cancers first and that there is a paucity of data on rare and less common cancers.


Consequently, Cancer52 believes that there needs to be:


If useful, we could provide a diagram showing the overlap between lung cancer, the less survivable cancers and rare and less common cancers in terms of mortality and incidence, if that would be helpful.


Finally, Cancer52 and our 104 cancer charity members are willing to help in any way we can with reducing the backlog and meeting the ambitions set out in the NHS Long Term Plan; please do let us know if there is anything else more information the Committee would find helpful.


We look forward to reading the Committee's Report in the New Year.


Best wishes






Jane Lyons CEO



t cancer52org



Nov 2021