Written evidence submitted by SEN Reform NI, relating to the funding and delivery of public services in Northern Ireland inquiry (FPC0034)
On behalf of SEN Reform NI, and for consideration within the Committee's inquiry into the funding of public services in Northern Ireland, I am writing to present written evidence concerning the deepening crisis in special educational needs (SEN) provision that is affecting our children, precipitated by recent budgetary cuts. As parents, we are deeply concerned with the lack of Executive oversight, and lack of accountability, regarding the substandard SEN education system in Northern Ireland. It's particularly distressing to witness the Education Authority's consistent inability to fulfill the statutory requirements for children with SEN, especially when such neglect goes unchallenged. This oversight is not only a dereliction of duty but also jeopardises the well-being and future of our most vulnerable children.
Who we are: Established in June 2023 as a direct result of the current crisis, SEN Reform NI is a parent and carer-led advocacy group dedicated to protecting the educational rights of children with SEN. Our mission is to champion the overhaul of the SEN system in NI, a system independently deemed as inadequate, and to actively resist further funding reductions. Presently, we voice the concerns of over 800 families with children with SEN. Our petition (www.change.org/p/sen-reform-for-northern-ireland), urging the reversal of 2023/24 SEN-related budget reductions and a comprehensive overhaul of the SEN system in NI, has garnered over 15,000 signatures to date, underlining the gravity of the public concern.
As of July 26th 2023, 149 children with SEN statements, many of whom have complex learning needs, have yet to be allocated school placements, as reported by ITV News. Such a figure is unparalleled. This, combined with a rise in instances where children with SEN are reportedly placed in inappropriate educational settings which do not comply with their legally stipulated needs, underscores the pressing nature of the situation.
We provide the subsequent evidence to underscore the gravity of the current crisis and demonstrate the biased impact these budgets are inflicting on children with SEN. We believe this information addresses the following terms of reference from the funding inquiry:
- the impact of the lack of a functioning Executive on budgetary management and strategic decision-making across Northern Ireland Departments;
- the financial situation facing Northern Ireland’s public services, including the police, health, education and children’s social care, and the consequences of budgetary pressures on the delivery of those public services.
- A pivotal report released by the Northern Ireland Audit Office in 2020, titled ‘Impact Review of Special Educational Needs’ emphasised that ‘there is a need for an urgent overhaul of the SEN policies, processes and procedures” (p.3) and that ‘the current funding of SEN services is not financially sustainable’ (p.4).
- In 2020, another critical review, "Too Little, Too Late," was released by the NI Commissioner for Children and Young People (NICCY). This analysis similarly highlighted a SEN system that is exceedingly strained, grappling with the profound challenges of catering to the increasing needs and multifaceted learning challenges presented by children (p.7).
- The Public Accounts Committee’s ‘Report on Impact Review of Special Educational Needs’ (2021) concluded that ‘there has been a culture within the EA (Education Authority) whereby the continued failure of the Statutory Assessment process and the delivery of a sub-optimal service with deep rooted and systemic weaknesses was tolerated for far too long’ (p.6).
- Further evidence of the systemic inadequacies within the SEN framework was provided by the ‘Independent Review of Special Educational Needs Services and Processes’ conducted by Ipsos in 2023 on behalf of the Department of Education Northern Ireland (DENI). One of the most striking revelations of this report was the prevailing sense of dissatisfaction and disillusionment among both educational professionals and parents. The report lamented the evident stasis, particularly emphasising the lack of tangible change (p.153). Moreover, it issued an urgent recommendation for DENI, suggesting the formulation of a strategic action plan to outline transformative measures for SEN, within a year (p.156).
In essence, the combined findings of the reports highlight a trio of urgent concerns:
For Parents:
- Mental Health: The emotional toll on parents is immeasurable. The daily struggles, the constant advocacy, and the weight of uncertainty aggravate stress, anxiety, and sometimes even depression.
- Financial Strain: Many families are grappling with unforeseen costs – be it for private therapies, tutors, or simply the day-to-day added expenses of having a child at home full-time.
- Career Sacrifices: A significant number of parents have had to make the heart-wrenching decision to abandon their jobs or careers, further amplifying the financial strain and feeling of isolation.
- Neglect of Siblings: With the bulk of their time and energy channeled towards the SEN child, many parents express guilt and sadness over not being able to provide enough attention to their other children.
For the Child:
- Social Isolation: A school is more than just a place of education. It's where children build friendships, learn social cues, and forge memories. Without a placement, our children are stripped of these crucial, formative experiences.
- Lack of Therapies: An inappropriate school placement – or (arguably) worse, no placement – means our children are deprived of essential therapies e.g., speech and language, occupational therapy etc., tailored to their educational needs.
- Health and Safety Concerns: Without the proper environment and guidance, our children are at an increased risk of harm, both physically and mentally.
- Risk of Regression: Every day without a suitable placement or intervention jeopardises our children’s progress, with the looming risk of regression in skills and development.
To put a human face to these statistics and themes, here are two representative testimonies:
1 | |
Child | A |
Placement: | Nursery |
Statement status: | Statement completed since May |
SEN needs: | Severe cerebral palsy, epilepsy, severe Global developmental delay, non-verbal, non-mobile. |
Impact on family | I've been a carer 24/7 for almost 4 years. A couple hours of school a day is not only what my child needs and deserves, but I also deserve to be more than a mum for a little while. I gave up a wonderful career because I had no other option, I deserve some semblance of a normal life. My child deserves to be around other children and learning. Most of all, the EA needs to answer why it has refused to place them in Buddy Bear despite us asking and there being an appropriate place for them, while simultaneously not providing placement anywhere else. It not being of their funded schools is not good enough anymore. |
Parents | 2 and 3 |
Children | B and C |
Placement: | P4 |
Statement status: | Both children's statements were amended in June 2023 to say that their current Autism Spectrum Disorder (ASD) school units are not suitable and that special school setting would be more appropriate. They need a placement which will help with their behavioural, emotional, communicational, and educational needs. |
SEN needs: | Both children diagnosed with Autism and Severe Learning Difficulty. More recently child B was diagnosed with Attention Deficit Disorder. |
Impact on family | We have been contacting the EA all summer and don't get a response. We have now engaged a solicitor and two MLAs but the EA haven't provided an update to them either. We are at our wits end and have begun to have conversations about which one of us will have to leave our full-time employment to look after the children should there be no suitable school place made available for them from September. This will mean one less wage coming into a 5-person home during a cost-of-living crisis, mortgage hikes, increased food bills etc so we are dreading a negative outcome. |
The funding for SEN Coordinators in schools has been drastically reduced, going from £22m in the year 2022/23 to just £11m in 2023/24. These cuts demonstrate a clear disparity as they don't impact the placements of non-SEN students but adversely affect those with SEN. Moreover, The EA’s SEND Transformation Programme, crucial for implementing much-needed reforms, has been slashed by a staggering 50% for 2023/24. The reality of these budget cuts is played out by the fact that on the 1st of September 2023, while most other children step through the school gates to access their basic right to education, scores of children with SEN, along with their parents and carers, will be left behind. This act is deeply discriminatory and sends the harmful message that “due to your disability, you hold less value than your peers, and therefore you don’t deserve a placement that meets your educational needs."
The implications of these budget cuts are clearly not in keeping with the Minister of States’s intention to bring “NI’s finances onto a more sustainable footing”. The eventual costs of dealing with more complex issues arising from the neglect of our children will far surpass the immediate savings from the budget cuts. Overlooking early intervention will have ripple effects, impacting not just on the cost of education down the line, but also Health and Social Care. Moreover, families will bear the brunt, with parents potentially leaving full-time jobs to compensate for the educational gap that the State is legally responsible for. This will undoubtedly have notable economic repercussions and add even more strain to the already overburdened social services. More importantly, it is not just a matter of immediate financial considerations; it is a question of social justice, of ensuring an inclusive society, and of safeguarding the future of some of our most vulnerable citizens.
Our questions to the Government are as follows:
August 2023