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The right to privacy: digital data

Inquiry

Effectively sharing data across and between Government and industry has a number of potential benefits, but there are risks to doing so too. A key issue is public trust and the need for transparency with respect to how individuals’ data is used and shared. The Government’s December 2020 National Data Strategy and its more recent draft strategy, ‘data saves lives: reshaping health and social care with data’, address aspects of this. Specifically, the latter sets out an aim to “share anonymous data safely and appropriately across the entire health system”, which has raised concerns amongst patient groups and some privacy campaigners.

This inquiry is no longer accepting evidence

The deadline for submissions was Friday 28 January 2022.

Reports, special reports and government responses

No reports or special reports published.

Oral evidence transcripts

View all oral evidence transcripts
8 June 2022
Inquiry The right to privacy: digital data
Witnesses Professor Sir Ian Diamond (National Statistician and Chief Executive at UK Statistics Authority), John Edwards (Information Commissioner at Information Commissioner's Office), Lord Kamall (Minister for Technology, Innovation and Life Sciences at Department for Health and Social Care), Dr Mark Toal (Deputy Director of Research Systems at National Institute for Health Research), Jennifer Boon (Deputy Director of Data Policy at Department for Health and Social Care), Felicity Burch (Executive Director at Centre for Data Ethics and Innovation (CDEI)), Joanna Davinson (Executive Director at Central Digital and Data Office (CDDO), Cabinet Office), Julia Lopez (Minister for Media, Data and Digital Infrastructure at Department for Digital, Culture, Media and Sport), and Jenny Hall (Interim Director for Data Policy at Department for Digital, Culture, Media and Sport)
Committees Science and Technology Committee
Oral Evidence
11 May 2022
Inquiry The right to privacy: digital data
Witnesses Mark Sowden (Government Chief Data Steward (GCDS), Government Statistician and Chief Executive at New Zealand Stats), Christian Reimsbach-Kounatze (Information Economist and Policy Analyst at Organisation for Economic Cooperation and Development), and Professor Ben Goldacre (Professor of Evidence-based Medicine and Director at Bennett Institute for Applied Data Science, University of Oxford)
Committees Science and Technology Committee
Oral Evidence
20 April 2022
Inquiry The right to privacy: digital data
Witnesses Matt Westmore (Chief Executive at Health Research Authority), Dr Nicola Byrne, National Data Guardian (NDG) for health and social care, Dr Tim Ferris (Director of Transformation at NHS England), and Simon Madden (Director of Data Policy and Covid Pass Policy at Department of Health and Social Care)
Committees Science and Technology Committee
Oral Evidence
DDA0073 - The right to privacy: digital data
Witnesses Department of Health and Social Care
Committees Science and Technology Committee
Written Evidence
DDA0071 - The right to privacy: digital data
Witnesses Professor Sir Ian Diamond (National Statistician at Office for National Statistics)
Committees Science and Technology Committee
Written Evidence
DDA0070 - The right to privacy: digital data
Witnesses Information Commissioner's Office
Committees Science and Technology Committee
Written Evidence

Other publications

No other publications published.

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