Committees

The right to privacy: digital data

Inquiry

Effectively sharing data across and between Government and industry has a number of potential benefits, but there are risks to doing so too. A key issue is public trust and the need for transparency with respect to how individuals’ data is used and shared. The Government’s December 2020 National Data Strategy and its more recent draft strategy, ‘data saves lives: reshaping health and social care with data’, address aspects of this. Specifically, the latter sets out an aim to “share anonymous data safely and appropriately across the entire health system”, which has raised concerns amongst patient groups and some privacy campaigners.

This inquiry is no longer accepting evidence

The deadline for submissions was Friday 28 January 2022.

Upcoming events

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Past events

Wednesday 8 June 2022
9:00am Public
The right to privacy: digital data - Oral evidence 8 June 2022
9:00am
  • Professor Sir Ian Diamond (National Statistician and Chief Executive at UK Statistics Authority)
  • John Edwards (Information Commissioner at Information Commissioner's Office)
9:45am
  • The Lord Kamall (Minister for Technology, Innovation and Life Sciences at Department for Health and Social Care)
  • Dr Mark Toal (Deputy Director of Research Systems at National Institute for Health Research)
  • Jennifer Boon (Deputy Director of Data Policy at Department of Health and Social Care)
10:30am
  • Felicity Burch (Executive Director at Centre for Data Ethics and Innovation (CDEI))
  • Joanna Davinson (Executive Director at Central Digital and Data Office (CDDO), Cabinet Office)
11:00am
  • Julia Lopez MP (Minister for Media, Data, and Digital Infrastructure at Department for Digital, Culture, Media and Sport)
  • Jenny Hall (Interim Director for Data Policy at Department for Digital, Culture, Media and Sport)
The Grimond Room, Portcullis House
Wednesday 11 May 2022
9:20am Private
9:30am Public
The right to privacy: digital data - Oral evidence 11 May 2022
9:30am
  • Mark Sowden (Government Chief Data Steward (GCDS), Government Statistician and Chief Executive at New Zealand Stats)
10:15am
  • Christian Reimsbach-Kounatze (Information Economist and Policy Analyst at Organisation for Economic Cooperation and Development)
11:00am
  • Professor Ben Goldacre (Bennett Professor of Evidence-Based Medicine and Director at Bennett Institute for Applied Data Science, University of Oxford)
Room 15, Palace of Westminster
Wednesday 20 April 2022
9:20am Private
9:30am Public
The right to privacy: digital data - Oral evidence 20 April 2022
9:30am
  • Matt Westmore (Chief Executive at Health Research Authority)
  • Dr Nicola Byrne, National Data Guardian (NDG) for health and social care (National Data Guardian at National Data Guardian (NDG) for health and social care)
10:15am
  • Dr Tim Ferris (Director of Transformation at NHS England)
  • Simon Madden (Director of Data Policy and Covid Pass Policy at Department for Health and Social Care)
Room 8, Palace of Westminster
Wednesday 23 March 2022
9:20am Private
9:30am Public
The right to privacy: digital data - Oral evidence 23 March 2022
9:30am
  • Professor Andrew Morris (Director at Health Data UK (HDR UK))
  • Phil Booth (Co-ordinator at medConfidential)
10:15am
  • Professor Christopher Holmes (Programme Director for Health and Medical Sciences at Alan Turing Institute)
  • Dr Melissa Lewis-Brown (Head of Research Data Strategy at Cancer Research UK)
11:00am
  • Professor Aziz Sheikh OBE (Director Lead: Digitally Enabled Trials at Breathe Health Data Research Hub, and Director of the Usher Institute and Dean of Data at Edinburgh University)
  • Professor Chris Molloy (Chief Executive Officer at Medicines Discovery Catapult)
Room 6, Palace of Westminster

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