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Catastrophic care costs faced by people with dementia to be examined by MPs

12 May 2021

The Health and Social Care Committee will hold a short inquiry into the poor experiences of the social care system faced by many of those living with dementia and their carers. Catastrophic care costs, difficulty accessing care and poor quality of care will be examined.


The inquiry builds on the Health and Social Committee’s report in October 2020, which called for an £7bn annual increase in social care funding by 2023-24, a £46,000 lifetime cap on care costs and for the Government to publish a long term plan for the social care sector.

There are currently around 885,000 people living with dementia in the UK with many relying on support from the social care system.

Purpose of the session

The first of two evidence sessions will be held next week and will hear first-hand experiences of the dementia care system from two individuals.

The session will also explore how the social care system can be reformed to better support those living with dementia and their carers, also hearing from senior leaders at Alzheimer’s Society, Age UK and the Local Government.

The Committee will hear from the Minister at a later date on the Government’s commitment to ensuring all those living with dementia care are able to live well.


Tuesday 18 May 2021

Witnesses from 10am:

  • Jonathan, an individual with lived experience
  • John, an individual with lived experience

At approx. 10.30am:

  • Fiona Carragher, Director of Research and Influencing, Alzheimer’s Society
  • Caroline Abrahams, Charity Director, Age UK
  • Sarah Pickup, Deputy Chief Executive, Local Government Association

Further information

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