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Research into fibrodysplasia ossificans progressiva debated by MPs

1 December 2021

On Monday 6 December, MPs will debate a petition relating to Fibrodysplasia Ossificans Progressiva (FOP).

Dedicating funding for research into Fibrodysplasia Ossificans Progressiva (FOP)

Elliot Colburn MP, a member of the Petitions Committee, has been asked by the Committee to open the debate. MPs from all parties can take part. Maria Caulfield MP, Minister for Patient Safety and Primary Care, will respond for the Government.

The petition, which has more than 111,000 signatures, states: “Invest in FOP research to support this ultra-rare disease community. Research into FOP could inform the understanding/treatment of many more common conditions such as osteoporosis, hip replacements, DIPG (a rare childhood brain cancer) and many common military injuries.”

In response to the petition, provided on 12 October 2021, the Government said: “The Government recognises the challenges faced by people affected by rare disease, and funds research into rare conditions – including fibrodysplasia ossificans progressiva – via NIHR and UKRI.”

What are petitions debates?

Petitions debates are 'general' debates which allow MPs from all parties to discuss the important issues raised by one or more petitions, and put their concerns to Government Ministers.

Further Information

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