Government’s approach to personal health data sharing examined
18 March 2022
In the first session of the Right to privacy: digital data inquiry, the Science and Technology Committee will consider the sharing of personal health data for innovation and the associated privacy concerns.
- Watch Parliament TV: The right to privacy: digital data
- Inquiry: The right to privacy: digital data
- Science and Technology Committee
Wednesday 23 March 2022
- Professor Andrew Morris, Director, Health Data UK (HDR UK)
- Phil Booth, Co-ordinator, medConfidential
- Professor Christopher Holmes, Programme Director for Health, Medical Sciences, Alan Turing Institute
- Dr Melissa Lewis-Brown, Head of Research Data Strategy, Cancer Research UK
- Professor Aziz Sheikh OBE, Director Lead: Digitally Enabled Trials, Breathe Health Data Research Hub and Usher Institute
- Professor Chris Molloy, Chief Executive Officer at Medicines Discovery Catapult
The Government’s proposals to reform data sharing and data protection, outlined in its consultation ‘Data: A new direction’ and in the ‘data saves lives’ draft strategy, have prompted concerns about the overall weakening of rights and protections and its implications for the EU Adequacy Decision regarding data. MPs will hear a range of views from the research community, third sector, innovation ecosystem and privacy campaigners. The session will also consider the current effectiveness of UK data governance and robustness of ethical guidance.