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Government’s approach to personal health data sharing examined

18 March 2022

In the first session of the Right to privacy: digital data inquiry, the Science and Technology Committee will consider the sharing of personal health data for innovation and the associated privacy concerns.


Wednesday 23 March 2022

At 9.30am

  • Professor Andrew Morris, Director, Health Data UK (HDR UK)
  • Phil Booth, Co-ordinator, medConfidential

At 10.15am

  • Professor Christopher Holmes, Programme Director for Health, Medical Sciences, Alan Turing Institute
  • Dr Melissa Lewis-Brown, Head of Research Data Strategy, Cancer Research UK

At 11.00am

  • Professor Aziz Sheikh OBE, Director Lead: Digitally Enabled Trials, Breathe Health Data Research Hub and Usher Institute
  • Professor Chris Molloy, Chief Executive Officer at Medicines Discovery Catapult

The Government’s proposals to reform data sharing and data protection, outlined in its consultation ‘Data: A new direction’ and in the ‘data saves lives’ draft strategy, have prompted concerns about the overall weakening of rights and protections and its implications for the EU Adequacy Decision regarding data. MPs will hear a range of views from the research community, third sector, innovation ecosystem and privacy campaigners. The session will also consider the current effectiveness of UK data governance and robustness of ethical guidance.

Further information

Image: CCO