Call for Evidence
The right to privacy: digital data
This submission form is not currently public. Please only use this form if invited to do so by the committee, otherwise your submission might not be considered.
Effectively sharing data across and between Government and industry has a number of potential benefits, but there are risks to doing so too. A key issue is public trust and the need for transparency with respect to how individuals’ data is used and shared. The Government’s December 2020 National Data Strategy and its more recent draft strategy, ‘data saves lives: reshaping health and social care with data’, address aspects of this. Specifically, the latter sets out an aim to “share anonymous data safely and appropriately across the entire health system”, which has raised concerns amongst patient groups and some privacy campaigners.
The Committee is therefore seeking written submissions until 23:59 on Friday 28 January 2022 addressing any or all of the following topics:
- the potential benefits, including to research, to effectively use and share data between and across Government, other public bodies, research institutions and commercial organisations, and the existing barriers to such data sharing;
- the extent to which data issues are appropriately addressed by the Government’s National Data Strategy, its draft strategy, data saves lives: reshaping health and social care with data, and its consultation Data: a new direction;
- the ethics underpinning the use and sharing of individuals' data in health and care contexts;
- the extent to which appropriate safeguards and privacy are applied in the usage and sharing of individuals' data; and
- the effectiveness of existing governance arrangements, e.g. the Centre for Data Ethics and Innovation.